Monday, January 26, 2009

Advice, Please?

I know a young couple. S and C. C went to highschool with me, and S went to highschool with Lady. But it really wasn't until S and C married 5 years ago that we all became close.

They have now seperated. C remains in a major city for her job. S is at home with his family.

I am shocked and heartbroken. I love them both and wish the best for them both....

Any words of wisdom?

A New Week, Some Energy, and Some News

Welcome to my Monday. I got my shot Friday afternoon, so by Friday evening I was full of weird, almost dysregulated energy- Thank Goodness that Lady is unendingly patient and just providing me with things I could do. Maybe my RAD tendancies are showing?

I'm kidding.

I'll be travelling Feb 20-23ish, for a meeting and a break. Wish I could share my break with all my blogging friends.

Also- P. 56 in the nearest book to me is Cris Beams Transparent and the 5th sentence reads

"Dominique, for instance, had Julianna, who, if she had been born an insect would have been born a firefly."

Tuesday, January 20, 2009

Books about Radishes for Radishes?

Do they exist?

The reason I ask (and I'm not talking straight biography here, I'm talking fictional books) is that there were very few books about kids with CP when I was small. In fact, now that I think about it, there are still not that many.

But one I was very happy to find was Mine for Keeps by Jean Little. It was, however, written in 1962, so not the most relevant for a little girl living with CP 30 years later- but there were some pieces.

Of course, as I got older I've really begun to see and critique the flaws in Little's book. She didn't have CP, she didn't live CP, she only taught some children who did- So Sal's life reads a little like "I did this. And then I did this. And then I did this." Like an observer.

The author does live with vision loss, knows it intimately, and this shines through in another of her books- From Anna. Published in 1973, Anna is a young girl living with vision loss, and her story although told in the same, simple appropriate language for the age group, rings much more...true, I suppose. Anna just doesn't go to school with her glasses- She *IS* at school with her glasses.

This got me thinking about Radishes. Are there similar books? Would Radishes who are in recovery find comfort in a book about a boy or girl with an Awesome Mom and an AT and weighted vests?

Hoping this post is making a little sense- I'm going to hit publish anyway

Monday, January 19, 2009

Forcing Self To Blog

I am still here.

I read every day and laugh and shudder along with so many of you....

Quite tired- Am hoping to see Doc this week for a B12 injection that will at least make me think I'm feeling better.


Thursday, January 15, 2009

Constant Advocacy

I'm back at school now, and have been back for about a week. Am tired already. Am tired of advocating for myself- sending e-mails to make sure my classrooms are accessible, making sure I can use my laptop in class, making sure the elevators are working...

Oh, elevators. There is one which controls my access to two of the buildings in which I have class- It's been working on and off since I started school on Jan. 8, and today was an off day. And I realised, as a first year student with a disability, sobbed on my shoulder about how not fair it was that the elevator was broken, that I just wasn't there anymore. I've been at uni for 10 tems now. Elevators have broken before my career at uni, will break after my career at uni. I will just sit back and wait for them to fix it. I don't care about how 'fair' or not it is anymore.

There are really days I feel tired of fighting.

And then I read a post like J's
And I think that if that little dynamo can be so courageous- I just might have one more letter or signature in me.

Wednesday, January 7, 2009

Ramblings Just Before School Starts

So I'm back to school 5 days a week as of tomorrow. I love the start of a semester- the rush and energy of starting new courses. It's only about 6-7 weeks in that I get bogged down with pain and stress and fear and procrastination and depression and all that fun stuff. Any suggestions for tapping or rubbing around that, folks? Or other tips?

Lady's coming back too, as my PCA everday and my classmate in one course.

Sister Lizzie has been back in school since Monday- I don't think she's impressed, but then again what DOES make you impressed when you're 15?

I'm also considering a job as a respite provider for a family friend- Emotional respite as opposed to physical care which is what I get myself. It's a testament to the wide array of abilities of the non-normal that we can have and give services that are similar!

Well, I'm off to pack my bookbag

Light, Love and Energy


Tuesday, January 6, 2009

On McGuyvering

I am emotionally and physically atypical. I carry pain meds and 'rescue' anxiety meds with me almost everywhere, though I use the latter very sparingly. However, I can manage in the *strangest* situations- where the average 'normal' would fear to tread.

I call this McGuyvering.

Down to the wire, faced with miles of red tape and governmental ins and outs? I got it.

24 hours notice to do a speech in front of 100+ people? I got it.

Asking for help in a store? I so don't got it.

Pain, too is subject to these weird abilities to manage or work someting out.

Tattoo? No problem

7 Major surgeries and counting? Hurts, but gotta do it.

Dentist? Only if my blankie is coming too.

But the funniest bit of my McGuyvering absolutely has to be when it goes wrong. Some things physical I cannot do- such as get on my new and very cute Emu brand boots. However, I can walk down the stairs with a load of laundry, a cellphone, and a butterfly cane. My computer is also my attachment to the world, so I'm very resourceful when it comes to Her Ladyship (It's even her name on the network, okay?)

So I lose a key on Her Ladyship's keyboard- my V key, if anyone is curious. Normally, these snap right back on. but V does not seem to be doing it. Nothing daunted, I pop off another key, my M key for those of you playing along at home. It looks the same, and also refuses to snap back into its happy little spot.

Next, off comes the Y key- Aha! There is a little plastic assembly that holds the key in place, henceforth known as Circle Thing and Rectangle Thing. Rectangle Thing is still attached to the keyboard itself. Circle Thing? Well, it's somewhere on my bed. I find Circle Thing, replace my Y key and pop off every writer's favourite; our friend semicolon. Semicolon is a wonderfully co-operative little key and shows me exactly how Rectangle Thing and Circle Thing are supposed to nestle inside of each other so the key can come home.

With spastic fingers, but a few deep breaths, I set out to reunite Rectangle Thing, Circle Thing, and my V key and M key. I've almost got it when....


One of the little, teeny tiny ridges that holds ON to Rectangle Thing, perhaps feeling ignored, snaps off. I lay aside my keys and sigh- This is a job for the happy people at Dell it seems.

However, beloved Lady still assures me that the reason I am the ABSOLUTE McGuyver is that I can type with very little interruption and use the little "keyboard nubbies."

The REAL Ramblings of Rolladyke

So I've got some posts brewing, Awesome followers- Feel free to read all or none of them, comment as many times as you like or not at all.

Hopefully these will give you some insights into me and perhaps some of your own little 'non-normals' or maybe they'll just make you wonder what that gal down in Newfoundland is talking about.

Either way, I hope we both have some fun.

Light, love and energy