Wow, it's shaping up to be quite a week. Thank God for some new meds (Well*butrin) which are helping me. Wish I had tried this particular drug family years ago! S-S-R-Is make me feel like my brain is jumping out of the top of my skull and make me sleep 16 hours per day- These don't!
Why is it shaping up to be quite a week? Well, I have a keynote address to give tonight for a project called All Abillities Welcome, and then on Thursday I'm off to Ottawa for a Strategic Planning meeting with the Active Living Alliance... And let's not forget that I'm still at university, too!
I want to leave you all with a final thought- Some of you will know immediately what I'm referring to when I say this.
The "disability community" and by this I mean all atypical folks, all folks who parent atypical folks, and all folks who work with and for atypical folks, has enough to deal with. Having an attack from what should be an ally or at least a silent visitor shakes all of us to the core and detracts from the progress we're trying to make.
I learned something from a video when I was little that maybe some "grown ups" need to go back and revisit. "If you can't say somethin' nice, don't say nothin' at all."
Monday, March 23, 2009
Thursday, March 19, 2009
Seatbelts
And this is why I will uncomplainingly wear a seatbelt for the rest of my life. It stopped me from getting up close and personal with the dash/windshield when I was rear-ended today
Thursday, March 12, 2009
Climbing
Sorry to have worried you all...
I cannot eat an elephant all at once, but I have taken some small bites today and will hope to take some more soon.
And there is still music in the world.
I'm grateful for that, and for all of you.
I cannot eat an elephant all at once, but I have taken some small bites today and will hope to take some more soon.
And there is still music in the world.
I'm grateful for that, and for all of you.
Monday, March 9, 2009
Saturday, February 21, 2009
Vacation
Hello, Blogger Friends!
After making it out two hours late on Thursday, reaching my desination city and then *turning around* due to ice on the runway, Lady and I reached our hotel Friday afternoon, after flying first class!
Major kudos to Edwina the Air Cannda agent for calling me personally with my upgraded reservation!
Am resting and recharging for a few days, but couldn't resist sharing a few pictures with you.
My awesome accessible room where I diligently sit blogging on my (free!) Internet connection
My Accessible Bathroom
And my Build a Bear- Complete with Wheelchair, because I'm *really* just a kid.
Gawain the Build-A-Bear is really making me consider writing a children's book though
Tuesday, February 10, 2009
Birthday Blogging- Or, why I am not a RADish
(This is not meant to put any blame on the radicals I love so much- Just something I was thinking on)
So, today is my birthday and I am 23- and I asked myself why I have been able to make it so far, when, if you look at my life on paper, it looks like I should have some pretty big issues.
My Mom got pregnant when she was 16 and gave birth to me 10 weeks early. For the first two weeks of my life, no one could touch me, and they even told my Mom "Don't get attached to this baby." Even when I could be touched, I was fed by ng tube for another 6 weeks, as my sucking reflex was "broken"
I spent the first year of my life shrieking in pain from muscle spasms no one knew I was having, while my entire family took me from specialist to specialist trying to figure out why I cried so much, why I couldn't sit up or hold my head up, why I didn't use my left hand, why I hated being swaddled.
It's hard to love a kid like that- Pain cries especially.
But I put the blame of loving me on two people- My Mom and her mother, my Nan.
Nan was the first person to hold me. She had 10 children already, and simply took me on as #11, cutting my mother's fingernails in the caseroom so that she wouldn't scratch me with her long 80s inspired talons. She also learned how to drop the feeding tube down my nose like a pro so she could do my noon feeding when Mom went back to school, and there was *never* any talk about not taking me home once I got out of the NICU.
Mom is another story, the sheer weight of which didn't hit me until I was 16. See, my Mom made some big mistakes... So my whole life I had wondered what it would be like if I had a Mom in her 30s or 40s like my friends had... someone who wasn't taking classes or still having "girls nights out".
And then I had a pregnancy scare- REALLY only me sitting close to a boy and being very naive- and spent the worst 3 days of my life hoping my cycle would come, and scared out of my mind that it wouldn't. It came, of course. Sperm can not jump through 4 layers of clothes and across distances!
But, when it was all over and I sobbed to my Mom over the phone (I had taken refuge at Nan's just in case) "How did you EVER have a baby? Weren't you scared!! Someone must have made you!!"
She answered,
"I wanted you. From the minute I knew you were there."
So, today is my birthday and I am 23- and I asked myself why I have been able to make it so far, when, if you look at my life on paper, it looks like I should have some pretty big issues.
My Mom got pregnant when she was 16 and gave birth to me 10 weeks early. For the first two weeks of my life, no one could touch me, and they even told my Mom "Don't get attached to this baby." Even when I could be touched, I was fed by ng tube for another 6 weeks, as my sucking reflex was "broken"
I spent the first year of my life shrieking in pain from muscle spasms no one knew I was having, while my entire family took me from specialist to specialist trying to figure out why I cried so much, why I couldn't sit up or hold my head up, why I didn't use my left hand, why I hated being swaddled.
It's hard to love a kid like that- Pain cries especially.
But I put the blame of loving me on two people- My Mom and her mother, my Nan.
Nan was the first person to hold me. She had 10 children already, and simply took me on as #11, cutting my mother's fingernails in the caseroom so that she wouldn't scratch me with her long 80s inspired talons. She also learned how to drop the feeding tube down my nose like a pro so she could do my noon feeding when Mom went back to school, and there was *never* any talk about not taking me home once I got out of the NICU.
Mom is another story, the sheer weight of which didn't hit me until I was 16. See, my Mom made some big mistakes... So my whole life I had wondered what it would be like if I had a Mom in her 30s or 40s like my friends had... someone who wasn't taking classes or still having "girls nights out".
And then I had a pregnancy scare- REALLY only me sitting close to a boy and being very naive- and spent the worst 3 days of my life hoping my cycle would come, and scared out of my mind that it wouldn't. It came, of course. Sperm can not jump through 4 layers of clothes and across distances!
But, when it was all over and I sobbed to my Mom over the phone (I had taken refuge at Nan's just in case) "How did you EVER have a baby? Weren't you scared!! Someone must have made you!!"
She answered,
"I wanted you. From the minute I knew you were there."
Sunday, February 1, 2009
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